Local Offer
Services for children and young people in Northamptonshire (aged 0-25) with special educational needs and disabilities.

Muscular Dystrophy Helpline

Type of service:
National Organisation
Address:
61A Great Suffolk Street, London, SE1 0BU
Telephone number:
0800 652 6352
Service description:
Our phone and email information service is here weekdays 8.30am - 6pm to address any of your concerns about muscular dystrophy and other related conditions. You can contact us on our freephone support number and via email:

Over more than 50 years, the charity has contributed to crucial scientific breakthroughs in the field of muscular dystrophy and related neuromuscular conditions such as: laying the foundations for the promising technology of 'exon skipping' which is currently being tested in clinical trials for boys with Duchenne muscular dystrophy, and funding work that has led to a scientific breakthrough in finding a treatment for mitochondrial myopathy, which is now close to clinical trial.

Scientists and clinicians are beginning to express cautious optimism that treatments might become a reality in the near future, but to do this we need to continue to fund research. We aim to find treatments and ultimately cures for muscular dystrophy and related neuromuscular conditions and improve the lives of everyone affected by them and we need your help to do this.



Cost:
Free
Age range:
0 - 0
Eligibility criteria:
  • Anyone With Muscular Dystrophy
Referral route:
  • Contact Service Direct
Last updated on:
24/04/2017

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Updated budget timeline 2018/19

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